March 7

2024

Fabry Disease and Fabrazyme: Information for Patients, Families, and Friends

  • In-person - Hosted from Farmingdale, NY

August 29

2023

Neuronopathic Gaucher Disease: Rare in the West, Common in the East

  • In-person - Hosted from Tel Aviv, Israel

October 7

2022

FEBS 2022 Advanced Lecture Course - 360° Lysosome: from Structure to Genomics, from Function to Disease

October 5

2022

FEBS 2022 Advanced Lecture Course - 360° Lysosome: from Structure to Genomics, from Function to Disease

July 29

2021

Introducing Nexviazyme (avalglucosidase alfa-ngpt): A Treatment for Late-Onset Pompe Disease (LOPD)

July 25

2021

Improving patient care in MPS IVA through knowledge and empowerment

July 20

2021

Lysosomal Storage Disorder Quarterly CME Series:  New Insights into Lysosomal Storage Diseases’ Pathophysiology is Changing Treatment

  • Webinar
  • Virtual - Hosted from Fairfax, VA

July 1

2021

Genetic, Rare & Immune Disorders Symposium (GRIDs)

May 5

2021

CERDELGA® (eliglustat) Capsules: The Oral Treatment for Most Adults with Gaucher Disease Type 1

  • Webinar
  • Virtual - Hosted from Fairfax, VA

April 20

2021

Current and Emerging Treatments for 
Lysosomal Storage Diseases

Feb 11

2021

Critical Impact of Inflammation in Lysosomal Diseases: Unlocking future treatments and improving outcomes

  • WORLDSymposium 2021
  • Virtual - Hosted from San Diego, CA

Feb 10

2021

Pompe Disease: Recognize Symptoms. Diagnose Early

  • Webinar
  • Virtual - Hosted from Fairfax, VA