LDRTC Hosts First Gaucher Disease Educational Meeting

LDRTC hosts its first-ever Gaucher Disease Patient and Family Education Meeting. The guest speaker, Ravi Kamath, MD, PhD, spoke about the evaluation and management of the skeletal manifestations of Gaucher disease in children and young adults.

"LDRTC is proud to provide this opportunity for patients and their families to learn more about Gaucher disease, a rare and debilitating genetic disorder," said Dr. Ozlem Goker-Alpan, Founder and CMO of the Lysosomal & Rare Disorders Research & Treatment Center. "We are committed to advancing the understanding and treatment of this disease and are delighted to offer this educational meeting."

Education and Fun

During the meeting, we launched "Our Journey with Gaucher Disease", a book published by LDRTC with stories written by patients and their families impacted by Gaucher disease.