President

Ozlem Goker-Alpan, MD

Dr. Ozlem Goker-Alpan is an internationally recognized physician-scientist dedicated to improving care for people with rare diseases. Through compassionate leadership and research, she advances the diagnosis and treatment of lysosomal storage disorders while supporting patients and families.

Treasurer

UyenSa Dinh

With more than 25 years of healthcare leadership, UyenSa Dinh provides executive direction across practice operations, regulatory affairs, and patient services. She builds high-performing teams, drives organizational excellence, and elevates patient experience.

Secretary

Christopher Heredia, JD

Chris Heredia is a passionate advocate dedicated to informing, supporting, and empowering the Gaucher community. Professionally, Chris is a Risk Control Consulting Director who advises law firms on risk management, liability, and professional responsibility. He previously practiced law at an Am Law 50 firm.

Director

Ari Zimran, MD

Ari Zimran, MD, is a senior physician and former director of Shaare Zedek Medical Center’s Gaucher Unit. A leading Gaucher disease researcher, he has published 360+ papers, led treatment trials, identified a possible Gaucher–Parkinson link, and founded AGYANY Pharma.

Director

Muge R. Kesen, MD

Board-certified ophthalmologist and Founder of the Retina and Uveitis Center in McLean, Virginia. She specializes in retina, uveitis, and inflammatory eye disease, providing advanced, patient-centered care.