Career and Educational Opportunities
The Lysosomal Center is committed to providing educational opportunities to patients and research communities. From offering CE credits to professionals at our GRIDs symposium to presentations to patient associations, LDRTC builds awareness of research and treatments locally and internationally. We also provide community education, tabling events, training, and internships as part of our mission to create a greater understanding of rare genetic disorders’ research, and treatment.
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Research Laboratory Technician
Position Summary: A Research Laboratory Technician position is available in the translational research laboratory. Projects in which the candidate will work include studies of molecular aspects of lysosomal storage diseases pathology, the role of lysosomes in autophagy, immunological aspects of lysosomal diseases.
Duties and Responsibilities:
- Conduct research work and laboratory analysis following clearly defined procedures.
- Methods including RT-PCR, PCR, enzyme assays, westerns blots, cell culture, ELISAs
- Prepare reagents, slides and perform a variety of technical measurements.
- Analyze research data using computer programs and prepare statistical analysis.
- Search records and organize research data for scientific reports.
- Assist in writing, editing, and arranging materials for exhibitions, publications, and lectures.
- Maintain equipment and equipment technical support documents.
- Maintain inventory records.
- Supervise students in the laboratory.
- This position has no budgetary responsibility
Education / Experience (Preferred):
- Bachelor’s degree in the life sciences
- Expert level cell biologist
- Protein biochemistry experience
- Molecular biology experience
Skills and Abilities:
- Safely and accurately perform laboratory bench work for up to 8 hours per day
- Operate microscopes
- Focus attention on a repetitive task for extended periods
- Excellent communication skills
- Keep accurate and organized records of work performed
Bachelor’s degree in biology or related field.
RN / LPN
Position Summary: The RN / LPN will coordinate daily treatments for patients, works closely with physicians, setting up medication administration, and safely monitoring the patient through the duration of the infusion. In addition, the RN will be responsible for laboratory samples and experiments, and ensuring the efficiency of the orders
Duties and Responsibilities:
⦁ Review schedule and make daily assignments.
⦁ Assist MAs with starting IVs, hanging meds, vitals, and prompt electronic medical record documentation.
⦁ Check out infusion medication from pharmacy.
⦁ Administers medication through IV and monitors patient throughout the infusion, documents promptly in EMR.
⦁ Acts as the liaison between patient and HCP. Directs all clinical questions immediately to providers.
⦁ Provides patient teaching and/or instruction of medication and disease process.
⦁ Provides guidance to assigned staff.
⦁ Ensures patient safety, monitoring, and follow-up.
⦁ Coordinates patient care with referring physician as needed
⦁ Demonstrates appropriate hand washing technique to ensure proper infection control and follows universal precautions.
Health Care Provider Fellowship
This 12-month educational program is dedicated to provides the premier educational setting for producing excellence in patient care delivery. This fellowship program is beneficial for:
We offer an innovative and rare clinical curriculum specifically prepare the physician assistant and nurse practitioner to practice in lysosomal storage diseases (LSD), including Gaucher disease, Fabry disease, Pompe disease, MPS and Niemann Pick diseases.
The program includes opportunities to explore and develop skills in clinical care and clinical research in LSD. The program is focused on the therapeutic management of LSD through direct involvement with patient care and several funded clinical research projects in LSDs. Our clinical team is led by Dr. Ozlem Goker-Alpan, who has several years of experience in the management of patients with LSD and experience assisting learners who are engaging in a continuing career in LSD field.
The goal of our fellowship program is to provide an environment that fosters intellectual and professional growth and development through mentorship and individualized goals. Specific areas of emphasis include a clinical practice of patients and their families affected by LSD and study how to manage a clinical research practice.
Our fellowship program offers a dynamic clinical exposure across many types of LSD, including Gaucher disease, Pompe disease, Fabry disease, MPSs, and Niemann-Pick diseases. The fellows will be directly working with patients who have already established diagnoses, as well as with patients referred for a suspected diagnosis of an LSD. The fellow will have the opportunity to follow the patients longitudinally and be acquainted with clinical, radiologic, and laboratory procedures, including disease-specific biomarkers that aid in assessing disease severity, progression, and response to therapy. The fellow will be required to attend weekly genetics clinic meetings, journal clubs, monthly lectures, as well as patient outreach meetings, local conferences, and professional meetings.
By the end of the training program, the fellows should have developed the full range of clinical skills required for managing the patients with a variety of LSD. Demonstrate knowledge of novel LSD diagnostic methods, lean effectively manage a treatment plan for LSD patients.
The goal of this program is to provide the necessary skills and resources for the fellow to function independently while facilitating clinical care for patients with rare genetic diseases.
♦ Undergraduate/Graduate/Pre-med Internship Program
For information on applying, please forward your resume to firstname.lastname@example.org with which program you are interested in an internship.